> in spite of long experience telling me it will most likely not be appreciated.
Much appreciated. My approach to conversations is "hurt me with the truth, never comfort me with lies; tell me all you can, I'll filter it myself".
> I have a long history of being cold natured (including an abnormally low temp when not feverish),
I do too, actually - that's another thing no "expert" I consulted had anything to comment on (or has even shown interest in), even though this is surely an important marker.
> If you wanted my advice, which you most likely don't, I would suggest you get tested for Atypical CF if you haven't been previously and look into the possibility of metal poisoning as a factor.
I do want your advice. A quick google, however, did not find a reasonable reference for atypical CF, and since I don't have a sufficiently open minded doctor, I don't think that would work -- could you give more references about the definitions, what tests are involved, and if one can do them privately?
> Peace. And thanks for contributing to the conversation.
You might try searching for the term "variant cystic fibrosis" as well. There is no hard and firm definition. It is a newish diagnosis which basically recognizes that some people suffer the same issues as classical CF but to a less severe degree, kind of like Asperger's and several other forms of "autism spectrum disorder" get recognized as a milder form of the problem known as classic Kanner's Syndrome (aka severe autism).
The most common test is a sweat chloride, which basically measures the saltiness of your sweat. Historically, a result below 40 was considered normal, above 80 was CF and the range in between was an undefined grey zone which is now recognized as a milder form of CF. My son and I both tested consistently at 41. Though I have heard some different number ranges discussed on some lists, so there may be some variables I am unaware of.
I am not sure how you can get one. Mine required referral but my ex was career military and the referral was necessary so insurance would pay a civilian facility for the services. It simply isn't done just anywhere. There are several techniques, all noninvasive.
Some nonscientific "tests" or indicators: Does your skin/sweat taste saltier than average? Do you get worse aquagenic wrinkling than most people (in other words, do you prune up badly in the bath)? Do you seem more prone than average to suffer shocks from static electricity? Those are all typical for CF.
Much appreciated. My approach to conversations is "hurt me with the truth, never comfort me with lies; tell me all you can, I'll filter it myself".
> I have a long history of being cold natured (including an abnormally low temp when not feverish),
I do too, actually - that's another thing no "expert" I consulted had anything to comment on (or has even shown interest in), even though this is surely an important marker.
> If you wanted my advice, which you most likely don't, I would suggest you get tested for Atypical CF if you haven't been previously and look into the possibility of metal poisoning as a factor.
I do want your advice. A quick google, however, did not find a reasonable reference for atypical CF, and since I don't have a sufficiently open minded doctor, I don't think that would work -- could you give more references about the definitions, what tests are involved, and if one can do them privately?
> Peace. And thanks for contributing to the conversation.
Thank you. And good luck!